42 USC 300c-11 - Addressing sudden unexpected infant death and sudden unexpected death in childhood

U.S Code last checked for updates: Nov 22, 2024

§ 300c–11.

Addressing sudden unexpected infant death and sudden unexpected death in childhood

(a)

In general

The Secretary may develop, support, or maintain programs or activities to address sudden unexpected infant death and sudden unexpected death in childhood, including by—

(1)

continuing to support the Sudden Unexpected Infant Death and Sudden Death in the Young Case Registry of the Centers for Disease Control and Prevention and other fatality case reporting systems that include data pertaining to sudden unexpected infant death and sudden unexpected death in childhood, as appropriate, including such systems supported by the Health Resources and Services Administration, in order to—

(A)

increase the number of States and jurisdictions participating in such registries or systems; and

(B)

improve the utility of such registries or systems, which may include—

(i)

making summary data available to the public in a timely manner on the internet website of the Department of Health and Human Services, in a manner that, at a minimum, protects personal privacy to the extent required by applicable Federal and State law; and

(ii)

making the data submitted to such registries or systems available to researchers, in a manner that, at a minimum, protects personal privacy to the extent required by applicable Federal and State law; and

(2)

awarding grants or cooperative agreements to States, Indian Tribes, and Tribal organizations for purposes of—

(A)

supporting fetal and infant mortality and child death review programs for sudden unexpected infant death and sudden unexpected death in childhood, including by establishing such programs at the local level;

(B)

improving data collection related to sudden unexpected infant death and sudden unexpected death in childhood, including by—

(i)

improving the completion of death scene investigations and comprehensive autopsies that include a review of clinical history and circumstances of death with appropriate ancillary testing; and

(ii)

training medical examiners, coroners, death scene investigators, law enforcement personnel, emergency medical technicians, paramedics, emergency department personnel, and others who perform death scene investigations with respect to the deaths of infants and children, as appropriate;

(C)

identifying, developing, and implementing best practices to reduce or prevent sudden unexpected infant death and sudden unexpected death in childhood, including practices to reduce sleep-related infant deaths;

(D)

increasing the voluntary inclusion, in registries established for the purpose of conducting research on sudden unexpected infant death and sudden unexpected death in childhood, of samples of tissues or genetic materials from autopsies that have been collected pursuant to Federal or State law and for which the parent or guardian has provided informed consent for inclusion in such registries;

(E)

disseminating information and materials to health care professionals and the public on risk factors that contribute to sudden unexpected infant death and sudden unexpected death in childhood, which may include information on risk factors that contribute to sleep-related sudden unexpected infant death or sudden unexpected death in childhood; or

(F)

providing information, referrals, or peer or follow-up support services to families who have experienced sudden unexpected infant death or sudden unexpected death in childhood.

(b)

Application

(c)

Technical assistance

(d)

Reporting forms

(1)

In general

(2)

Update of forms

(e)

Definitions

In this section:

(1)

Sudden infant death syndrome

(2)

Sudden unexpected infant death

(3)

Sudden unexpected death in childhood

(4)

Sudden unexplained death in childhood

(f)

Authorization of appropriations

(July 1, 1944, ch. 373, title XI, § 1121, as added Pub. L. 116–273, § 2(2), Dec. 31, 2020, 134 Stat. 3352.)

cite as: 42 USC 300c-11